Showing posts with label Living With Parkinson's. Show all posts
Showing posts with label Living With Parkinson's. Show all posts

Tuesday, January 12, 2016

Smile, it may be your last!

Smile as if it will be the last time you'll be able to smile... ever, 
Parkinson's WILL take your smile.
Laugh as if it will be the last time you'll be able to laugh... ever, 
Parkinson's WILL take your laugh.
Read as if you'll never be able to read again... ever,
Parkinson's WILL take your vision.
Walk like you'll never walk again... ever, 
Parkinson's WILL take your legs.
Whatever you do, do it, and experience it as if it will be the last time you will do it... ever, 
Parkinson's WILL sneak up on you and rob you of it eventually.
Never blow off an opportunity to do, make, or go, somewhere different, 
tomorrow IS NOT guaranteed
Above all,
Treat EVERYONE as if it will be the last time you see them... ever. 
Parkinson's will not rob you of the people you love, but YOU sure can.

Campy Out!

Saturday, April 7, 2012

April is Parkinson's Awareness Month

 It has been some time since I've posted, mainly because I've been busy messing up my "man shed," tuning up small engines for the Spring and Summer seasons, rebuilding an old 1954 ShopSmith Mark V, taking care of my service dog "The Chief" who had 4 knee surgeries in the past 2 months, and visiting with the Gimps and Geezers when I get the chance.

I wanted to take the time to write a quick note and post a movie about Parkinson's Disease, after all April is Parkinson's Awareness Month. So here goes!




Campy Out!

Sunday, January 8, 2012

Parkinson's Research

I am always humbled by the tireless efforts of disease researchers, disease foundation organizers and donors, and the army of positively motivated people who have been touched by any disease process let alone my favorite disease process of Parkinson's.

Here's a highlight from an interview with noted Parkinson's Researcher Professor Anders Björklun. 

 

He's working for me and any one with dealing with brain robbing disease processes.  My hat is off to Professor Bjorklun.

And another video from more of the Parkinson's Cure seeking team. MY BRAIN TRUST TEAM!



Campy Out!
Do what you can, when you can, for as long as you can.

Saturday, September 3, 2011

Solo Round Kitsap, Update 9

Took the boat out yesterday for a sail and what a good day it was! Set sail, towed the dinghy, anchored, boarded the dinghy from the boat, shipped Chief aboard the dinghy, went rowing with Chief, and put it all away!

Everything worked as expected with the exception of stowing the anchor, I need a bigger, preferably wider not taller, bucket for the anchor rode and chain! Someone recommended using an old fashioned laundry basket.

Hey! I'm ready to stow and go! Looking forward to some warm days and cool nights. The forecast is all about the GIANT high pressure system that is parking itself right off the north west coast. Which means late summer quiet and cool nights, and warm, sunny, and windy days! Looks like I hit the lotto on the first leg of the trip.

Still have a couple of things to post.  Pictures and forms.  I know boring to most, but if I post them, I'll always have a record of them on any computer I happen to come across on any trip I make.


Campy Out!

Friday, August 26, 2011

Solo Sail Around Kitsap, Update 7

Good evening!

11 days till underway!

Reflection time:

It seems like many people have been voicing concern about me sailing solo, let alone around Kitsap Peninsula. I'd like to take a moment to set the record strait and aleviate any fears that my friends and relatives may have about my being "fit" for solo sailing.

I'm 49 years old. I have had Parkinson's Disease for well over 10 years now. 18 months ago, I had brain surgery to install a Deep Brain Stimulator (DBS). The surgery was a breeze, but recovery was slow. The brain surgery was done for several reasons I'm sure, but to be quite honest I only remember two of them.

The first reason was that the DBS surgery in an early onset of Parkinson's patient, like me, might just be neuroprotective which "might" actually delay the "progression" of Parkinson's. (I hate that word progression. It is so misleading.)

The second reason that I remember was that I could get off some of the meds that I was taking, which also worked to prolong the "period of effectiveness" that most of the Parkinson's medications seem to have. This actually did happen. I'm on half the meds I used to be on.

So what's it all about any way????

When you, faithful reader, wake up in the morning and go through your morning routine, do you ever stop once to think that you might not be able to brush your teeth tomorrow? or tie your shoes? or zip your fly? Eat cereal from a spoon? Read the paper? How about just take a leak... standing up?

It's like this... I've been on and in the water my entire life. I grew up in Rhode Island and have Blue Ocean Water hard coded in my DNA. I have been sailing since the age of 13. Joined the Navy and retired after 3 ships and a few years at sea. I've cultivated a deep respect for the water, mother nature, good luck and more importantly... bad luck.

I am concerned about my safety, my balance, and the general day to day status of my Parkinson's disease symptoms. If I sat and wondered if I'll be able to sail next Summer, or if I'll have a "bad day" or "freeze" while sailing, or if I can physically handle The Chief (my service dog) while sailing, I would have "spent" a lot of time wondering, and would never get that time back. I could "wonder" myself into a depressive state, and that would do me absolutely no good! So I started scheming and made myself a deal...

The deal was that when my brother came up for a visit, I'd go sailing with him. It was his idea actually. And it worked out like a champ! Me and Ron had a really good time! I had initially planned on taking him down the Hood Canal and leaving the boat there, however the weather didn't cooperate. We ended up sailing for 3 days and had a blast! When he left, I got bummed, because I realized that I could have done the trip, but chickened out!

Sue and I sailed together two years ago and had a blast. She's by far my choice to sail with any time any where. Ron and I sailed this year and had a blast. I sailed a larger boat with some friends earlier this year and had a blast. Reflecting on these thoughts was invigorating! I had sailed my boat many times alone so what was stopping me from doing something that I'm very comfortable with?

And that was when I decided to talk to Sue about me doing the trip solo! She said, "Sure! You need to do this!"

I'm fairly competent at sailing, adamant about safety, push my luck on occasion, and have a deep respect for the power of wind and water. I like meeting new people and seeing the world from a different perspective. I am learning how to listen to my body and I think I'm actually getting better at listening to my body. Its all about fixing your boat to your standards, thinking through the scenarios, making sure that all the pieces of the puzzle have been carefully stuck together, and then get underway and deal with the outcome of your preparation.

So, when I get out of bed tomorrow morning... I will take a leak standing up, brush my teeth, have a bowl of cereal, read the paper, put my pants on, zip my fly, and tie my shoes.

If I can manage all that, I'll damn well go sailing!


The Friday, End of the Week, Break Down:

1. Tested two bank battery charger, SAT!
2. Tested both batteries. SAT!
3. Tested DC system analog volt meter. SAT!
4. Installed jack line (safety line).
5. Varnished anchor cleat wood blocks.
6. Installed dinghy seat box.
7. Painted holey bulk head.
8. Rewired and tested compass light. SAT!
9. Installed Jacobs ladder.
10. Stowed boat.

Left Ta Dooos:

1. Exchange 6 inch cleat for 8 inch anchor cleat, and install.
2. Test anchor system.
3. Test dragging dinghy.
4. Test motoring dinghy.
5. Test transferring from boat to dinghy and back.
6. Fabricate chart table
7. Varnish wood work
8. Evaluate fabrication of new awning.
9. Fabricate new sail gaskets (4)
10. Supplies
11. Clothes
12. Cruising Cash (How much per marina)
13. Log Book
14. Float Plan
15. Trailer Plan

Now to wonder where tomorrow will take me.
Grass = Maybe!
Plants = Maybe!
Boat = Maybe!
Sail = Maybe!
Movie = Maybe!
Long walk = Maybe!
Paint Shed = Maybe!


Maybe I'll get to them all, if I can tie my shoes.

Good night for now!

Campy Out!

Monday, August 22, 2011

Solo Sail Around Kitsap, Update 5.

Spend this last weekend working on the tedious projects that I really hate to do like sanding teak blocks, filling in nail holes on the dinghy seat, fabricating a jack line.  Spent time buying flashlights, some non perishable food, deep cycle battery, battery charger, and other things that have been on my list of stuff to get.

This weekend I worked on:

Finishing the inflatable boat seat box. Figured out how to fasten it to the wood floor of the dinghy, what to paint it with, and how to attach the hinge.

Buying more stuff to finish outfitting the boat.

Painted registration number on boat. Place annual sticker on boat.

Today I hope to complete:

Install outlet

Install battery charger

Charge Batteries

Paint aft bulkhead

No varnishing today... rain predicted... bummer

Bolt on Zodiac Bench after installing piano hinge and latch to top, and painting box.

Bolt on Anchor Cleat after varnishing it.

Install Jack Line

Stow safety lighting

Install cock pit item holders.

Plan meals (shopping list) for trip.

I think that should keep me busy for the day today.  Got to go to the gym first to work some of these muscle and joint kinks out.  Will update you all later on today as to my progress.


Campy Out!

Thursday, August 18, 2011

Solo Sail Around Kitsap, Update 3

As promised yesterday here is the list of items left to complete prior to my planned Sept 7th underway. I didn't include dates on these items due to the fact that this list is a moving target of money, energy, weather, and time.  I will color each item Green when completed. So here goes nothing!

Windsocket Refit Items:
Paint Registration Numbers on Inflatable dinghy
Fabricate and install Seat for Inflatable dinghy
Inflatable in Water
Rig and test inflatable tow line
Rig and test inflatable with boat motor
Install anchor cleat with backing block
Rig and Test anchor system
Fill old screw holes in bulkhead
Install dinghy tow cleat with backing block
Install battery charger
Install deep cycle battery (#2)
Charge deep cycle battery (#1)
Install Jack Line
Fabricate cooking board for cockpit (could be combined with inflatable seat)
Refit trailer
Measure and balance mast
Install cockpit item holder
Epoxy Puget Sound Chart to table top
Crab Trap
Stow boat
Supplies (Non Perishable)
Supplies (Perishable)
Fast Cruise Port Orchard
Underway

I'm so looking forward to getting underway, although I really enjoy working on the boat just as much sailing her.

Stay tuned sports fans! More updates coming!

Campy Out!

Wednesday, August 17, 2011

Sail Around Kitsap Update 2

OK Sports Fans... Another update on the Solo Sail Around Kitsap Project (S.S.A.K.P.)

I know, I really got to come up with a better acronym... any witty suggestions???

I've set the date of departure as September 7th, more specifically, on the falling tide and with a following wind. My second task was to work a three mandatory portage dates in the schedule in order to meet obligatory personal engagements. Here's what I've worked out:

We Aug 17 - Refit Continues
Su Sept 4 - Refit Ends
Su Sept 4 - Supply Load Out (Non Perishables)
Mo Sept 5 - Stow Gear, Review Saftey Gear, Inventory Check
Tu Sept 6 - Supply Load out (Perishables)
Tu Sept 6 - Fast Cruise
We Sept 7 - Depart Port Orchard Marina
Th Sept 8 - Kingston Municipal Pier, Kingston, WA
Fr Sept 9 - Pleasant Harbor, Brinnon, WA
Sa Sept 10 - Hood Canal Marina, Union, WA
Su Sept 11 - Visit Allyn Warf, Allyn, WA
Su Sept 11 - Hood Canal Marina, Union, WA
Mo Sept 12 - Ludlow Marina, Port Ludlow, WA
Tu Sept 13 - Poulsbo Marina, Poulsbo, WA
We Sept 14 - Return to Port Orchard Marina
Th Sept 15 - Event Prep
Fr Sept 16 - Major Event
Sa Sept 17 - Recover
Su Sept 18 - Restock Boat
Mo Sept 19 - Depart Port Orchard Marina
Tu Sept 20 - Docton Docks, Mauri Island, WA
We Sept 21 - Longbranch Warf, Longbranch, WA
Th Sept 22 - Visit Port of Allyn, Allyn, WA
Th Sept 22 - Fair Harbor Marina, Grapeview, WA
Fr Sept 23 - Swan Town Marina, Olympia, WA
Sa Sept 24 - Gig Harbor Municipal Pier, Gig Harbor, WA
Su Sept 25 - Return to Port Orchard Marina
Su Sept 25 - SPAGHETTI AND MEATBALLS!!!!

Now that's out of the way, I can focus on the left yet to do list and get the list projected out from to departure date. Just think... only 17 days of refit left!

Tomorrow, I'll update the project list for everyone to follow along.

Good night for now!

Campy Out!