Monday, October 18, 2010

Early Parkinson's Update Post

10/18/2010
I posted this about two and a half years ago.  Lots have changed.  Will update this in a day or so.

Date: Mon, 23 Jul 2007 16:48:07 -0700
Subject: Roger Campy's E-Blog


OK!  
This is my e-blog.  I'll probably post this on my myspace account as well.  I'll send everyone my link... when I remember to...
Now I've got all your addresses!  I realize yet again that I pretty much suck at sending out personal emails as I do business emails and tech work all freakin' day long.  When I get home, I head for my no tech boat for some real old world sailing.  blah blah blah
Presently I'm working on my next big sail to Hawaii with a possible follow on to Tonga and Sidney Australia next spring.  I'll keep you posted.
By now you've all probably heard through CNN (Campanelli News Network) that I have Parkinson's Disease.  Like many of the people in this family, I've chosen to take the shakes with the medicine and continue with life in my previously adopted nearly life long "To Hell with it" attitude!
I'd like to set a few things straight. 
 I'm listed as an early onset of Parkinson's patient (Stage 1) and only take 1 medicine "Mirapex" at present.   The way I figure it is that by the time I'm 70, I'll have had Parkinson's for over 25 years and I'll be just as full of shit as I am now, I'll just be constantly in motion, to which I say... "What else is friggin' new!" 
Pepere' used to say to me... "MOOODZEEE!  ARREZ VOTRE MOTER blah blah blah" or something that sounded like that.  My father used to say, "Roger, your motors running again."   So I guess I've been in motion for 45 years already, why stop now?  I just got a reason now... this is kind of like a mid-life extention of my much younger Hyperactiviy and Atention Deficit Disorder.  Either way, this isn't terminal, I can still sail for the time being and I still have far more good days than bad days, so I'll not be caving in to the emotional black well of depression just yet.
One small thing that does bug me a bit is that the Parkkinson's doctor told me that while I'm on this Mirapex medicine, I stand a 5 to 8 percent chance of developing behavior like compulsive gambling, drinking, or inappropriate sexual impulses.  I replied, "Where do I check my hands and penis in for the duration."  He smiled.  (He was wrapped way to tight for me.)
The internist doctor that I started with told me to keep my hand in my pocket when it shakes.  I'll know when to take Parkinson's medicine when it looks like I'm playing with myself all day long.  I like my internist better... he thinks like me.
Susan has been my pillar of strength over the past three or so months.  She's been keeping my honest and gently and lovingly nagging me just enought to keep at my assigned list of stuff to do.  Weekends are lazy and relaxed mostly spent watching the grass green when we're home and the sail fill with the easiest of breezes when were on the boat.
I'd actually say that things have suddenly changed for the better.  The future is no longer a guarentee.  I mean it is still there and all, but wether or not in involves a wheel chair isn't clear.  So while I'm still able to stand up and pee on stuff under my own power I'm going for it!
I'll send an update when motivated to do so.  Hopefully it will be soon, but as the weather is changing here in the Pacific North West, I'll most probably blow off the emailing until it starts raining again... in October. 
Until next time...
Roger Campy

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